Adult Congenital Heart Foundation is a nonprofit organization dedicated to improving the quality of life for adults with congenital heart defects in Romania. Through advocacy, educational, emotional and financial support, promotion of research, the foundation activities address themselves to the ~ 60.000 adults with congenital heart disease all over the country. The goals are to provide comprehensive care and information to adult patients with congenital heart diseases, their families, friends and care providers.
The founders are a small community of health professionals, lawyers, psychologists and patients determined to promote the interests of adults with congenital heart defects. The president of the foundation is Associate Professor Ioan Mircea Coman, MD, PhD, FESC, Vice President of the Romanian Society of Cardiology.
The main projects are the opening of regional centers specialised in health and legal consultancy, sensitizing public opinion to congenital heart issues through media and press release, financing medical care in specific cases, facilitating communication between patients and health care providers, supporting a national register for an adequate identification of the adults with congenital heart diseases. The opening of the first regional center is scheduled for July 2007 in Brasov.
All the necessary information can by found on the Foundation’s site: www.protcard.org. The site also contains a forum where patients may share their stories, ask for professional medical and legal advice.
Adult Congenital Heart Foundation is proud to sponsor the Central European Echocardiography Symposium - Sibiu 26-27.10.2007.